Meet Leukemia Warrior Jordan Johnson of Albany New York
His story as shared by his Mother Natalie
One week after my son's tenth birthday, on an early spring day he went to the doctor's office for routine labs, just a normal appointment, until it wasn't. The platelet count was extremely low and set us upon a path I was too familiar with. As a child I had AML; my sister died from complications of AML My mother lost her mother to AML Now I was certain. Even before the official diagnosis that my son, Jordan would also be facing AML and he is. Within a very few days he began bone marrow tests, spinal chemo, and IV chemo, which was then followed by side effects of varying degrees. This process has continued for six months. Continuous transfusions of blood have been a gift beyond measure in keeping Jordan alive and has allowed him to fight off additional problems and complications. To all those who donate blood, we are deeply grateful, Know that YOU have made a significant difference to children fighting cancer.
Jordan almost sailed through the first couple of months; I was in awe of his strength, his endurance, and his ability to adjust to living in the Children's Hospital where he has lived now for six months.
He was allowed to go home for a week in late June and early July, where he able to go out in public with a mask on. He attended his "moving up" day at school and a huge picnic with one of our favorite support groups, where he led the dancing! Immediately after the Fourth of July I readmitted Jordan for his third round of chemo, thinking maybe we'll just get through this chemo "unscathed", with no real crisis. Everyone in my family and our medical team continued to be surprised at how his body was handling the load of chemo he was receiving, until one night about a week after treatment, Jordan was rushed to the Pediatric ICU where he was placed on a ventilator, medically paralyzed, and fought for his life for three weeks. Jordan's lungs were bleeding as a result of his third round of chemo.